Family’s appeal for donations to fund Kells boy’s treatment
The desperate family of a little Kells boy, for whom time is running out, have urged people to support their GoFundMe appeal to help him.
Milo Poblocki's distraught parents want to bring him to Philadelphia in July for vital treatment that could save his life, but need to raise €25,000 in the next six weeks if this is to go ahead.
Seven year old Milo Poblocki was born with a life limiting condition - Mitrocondrial disease with Leigh syndrome - which progressively breaks down his organs. He cannot walk, talk, move or sit - but he has the most beautiful smile that has won the hearts of his local community.
“He has now been accepted for treatment in Philadelphia, but we need to raise another €25,000 before we go out there,” his mother, Alicja explains.
The people of Kells and the polish community got behind Milo and raised almost E25,000 for the little boys treatment, but they need another 25,000. Another major push is on to raise the rest of the money so he can take up this opportunity.
“If we aren't able to take this up, I don't how he'll get through another winter. His organs are slowly shutting down and we thought we lost him last winter.”
“We have also been given a 20 per cent discount on the cost of the treatment, which might not be available next year.”
“A few children with mitochondrial disorder gave been fitted with a special mitococtail that has stopped the progression of the disease at Philadelphia Children University Hospital. These children recovered enough to walk, speak and eat independently. This is Milo's only chance.”
“People have been very good. Our neighbours in Cherry Hill have been great. They supported us so much.
“We couldn’t believe the way the community of Kells got behind us, We didn’t expect it. People have very good hearts. We have got so much help,” says Alicja.
His GoFundMe page is Milo & Monster Leigh.
Despite his pain and sickness, Milo has a lot of joy in life.
“He attends the special care unit in St Mary’s Special School in Navan and he is very happy there,” Alicja explains.
“He goes to school two to three days a week, depending on how well he is. He is a happy boy and everybody talks about his lovely smile. He is always smiling, despite everything he goes through.
His family wants to ensure that Milo keeps smiling and are appealing for help to bring him to Philadelphia.